Eddie Brandt

by on April 6, 2016 » Add the first comment.

e-brand-dunkA note from Eddie’s brother Kevin.

Since we have talked about my brother Ed often on this thread, I thought I would give you a glimpse of his world with all the ALS bucket challenges going on. As many of you know, Ed has Dementia, and he is in a nursing home in Marion. These were taken about a year ago. We were playing nerf basketball in his room. Some of you may remember the Neidhart Rd. Nerf Basketball League we played in our garage. It was the EBA. Ertebern Basketball Association. You had to be there. He still likes to hoop it up.


CLICK EITHER PHOTO FOR AN ENLARGEMENT


Eddie was one of the sparkplugs of PHS Class of 75.  He was popular and well-liked by most of his classmates,
and even was nice to those of us more reticent in our interactions with other students. As one of the latter, I can testify that it is the truth.As the saying goes, bad things can happen to good people, Eddie has developed Pick’s Disease, for which today there is no cure.Pick’s Disease is a relatively rare progressive neurodegenerative disease.It can be most easily compared to early-onset dementia, or Alzheimers.At this time he still has some memory and recognition. Any cards can be sent to him at

Marion Pointe Nursing Home
409 Bellefontaine Ave
Marion, Ohio 43302
Room 308

Comments from Classmates:

Jim Castle You are an awesome brother to Ed, Kevin. Thanks for the pictures and the updates.

Sherry Miller Foust Great pics!! Hope he is well and not mistreated !!

Rick Roe If we had the Neidhart Rd. Gang vs. the Smeltzer Rd Gang, Big Ed would be the 1st one on the bus

Kevin Brandt Sherry Miller Foust– he is pretty good physically, not so much mentally. As far as care, we believe so…hope so.
Rick Roe – Definitely.

Rick Roe Me, mitch, Ben, Sheryl Davis, Mattheson’s , Pat landon Randy ransom, and a few side roaders

Amy Warner Bates You are a great brother, Kevin! Poor Ed… Who would have thought….

Paula DeLauder Martin Kevin, does Ed recognize you guys? I know Ed’s had his dementia for some years now, and I was wondering how it might differ from Alzheimer’s. (I saw Alzheimer’s also quickly ravage my mom physically, which is the double whammy.) Is Ed able to “enjoy” other things in his life to fill the hours, such as watch TV or listen to the radio/music, maybe? Can he read at this point? Just trying to understand where he’s at in his disease – as I said, my mom’s dementia moved so quickly that her life had no quality after a few years. Losing the ability to read (follow and understand something) or know what is going on in a TV show is SO tough on Alzheimer’s patients – makes the days SO long. My poor mom got so confused and would think the people on TV could SEE her, and it would freak her out. It was beyond heart-breaking. You are indeed a good brother to Ed. I wish him peace.

Kevin Brandt Paula: He recognizes us still, though he seldom speaks. We do thumbs up for yes and thumbs down for no. We ask simple yes and no questions. He has recognized visitors in the past, such as Christy, Tim Michael, Dane Ford, Linda Lytle and Cindy (he always called her Sylvia in school), and others. He must forget his visitors immediately after they leave. Seems short term is gone. Long term is still there, it just takes awhile for things to click. He looks at the TV, mostly sports and CMT. Don’t know if he comprehends. Just blank stares, no emotion ever. He looks at magazines and seems to read. Sports Illustrated. He can still shoot the basketball with either hand and can catch and throw very well. He walks and tours the hallways and other residents rooms. He still likes to grab the nurses girl parts, so glimpses of old “Eddie” is there.
It is difficult to visit, but we make the best of it. We play catch and he can play ping pong. He is literally living the life of “One flew over the Cuckoo’s Nest.” His version of Dementia is called Pick’s Disease. Just have to wonder why so many we know in that area have all these diseases. MS, ALS, Dementia, MD, Alzheimer’s, Parkinson’s, etc. I constantly wonder about myself when words don’t come or sentences aren’t made.

Paula DeLauder Martin Thanks, Kevin, for explaining Ed’s situation so well. Boy, do I know what you mean about that “wondering” thing when the words don’t come, etc.! I thought that Pick’s came on at a younger age, so I’m thinking you should have surely escaped it by now? I once made a list of all the people that I was aware of from Marion that had Alzheimer’s alone, and it was REMARKABLE! And that was only those that I knew about!! One can start getting paranoid, thinking it could have been something in the environment – you know, like that RV thing of their old high school being on top of the old munitions dump. You just wonder if we could have been drinking “bad water” or something in Pleasant township, or if maybe just a lot of great people had some really lousy luck. I know I take some various vitamins and supplements, hoping to help my brain in any way I can! I recently talked to a neurologist who told me to relax because the only real risk of heredity in Alzheimer’s (specifically), was in the early onset kind – when people get it in their 30’s or 40’s. I’ve heard this before, so you might share this with Cindy, as this would not be our case with my mom or her dad.

Rita Slack Roloson I hate Dementia! Love Ed! Thanks for being such a wonderful brother! Hugs!

Kevin Brandt Thanks everyone. Ed’s other siblings are all awesome and see him as often as possible and his mother is a true hero. She took him back into her home and cared for him for over a year until it became obvious doing so was endangering her and her health. Dealing with this disease and how it affects everyone is probably the worst.

Paula DeLauder Martin Caregiving at home for a dementia patient is a 24/7, 365 day-a-year job that beats a person down. You can’t even leave them alone to go out & run a quick errand or to just do the regular chores of daily living. My dad had to put Mom in a nursing home also, Kevin, for the same exact reasons you mentioned abt your Mom. It’s like the whole family suffers from the far-reaching effects of the disease, as you and Cindy both know well. All I can say is a lot of us, certainly not just me, understand & have been there. It does seem even more tragic when a loved one, such as Ed, is stricken at such a young age.

Mary Beth Clinger My sister cracks me up!!!!

 

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